Being the Queen of Procrastination and seeing as it is now March, I thought this would be a great time to write my New Years Goals for Pompy. That, and this teachers and therapists are asking for them. Potato, tomato *shrugs*
Therapy wise, our goals have been the same for quite a while.
2. Independent eating/drinking.
Whenever his epilepsy isn’t being a total A-hole, we’re actually plodding along alright! Around December, occasionally he would fall under the hypnosis of Thomas the Tank Engine or perhaps the rotating fan blades and not even realise that he was free standing for up to 20 seconds!!
My excitement level pretty much matched this:
This was the moment he saw a real life size, moving Thomas the Tank Engine. Best face ever.
We’ve always been fairly blessed with services, equipment and assistance practically falling into our lap, but this year, I thought I might try bring proactive. Might have something to do with the AWESOME Nespresso Coffee Machine my husband just got me as a belated Christmas present magically giving me extra energy. As you can see my husband is also a Master Procrastinator. I seriously do not know how ANYTHING ever gets done in our house.
So anyway, here are some things we’d like to achieve this year:
1. Wheels for Hope
This is an organisation that helps families with special needs get vehicles. We currently don’t own a car and are having to hire the smallest car imaginable. As a family we often need to transport 2 adults, 2 kids in car seats, the 3 older sisters, and either one or a combination of the following – Big Kimba Stroller, Double Pram, Maywalker (this actually doesn’t even fit in our car at all) and soon, a wheelchair. It’s actually ridiculous and trying to lift Pompy and all these things into this tiny car is breaking my back. I have developed my car packing skills to level PUZZLEMASTER 1000.
I keep trying to do that “The Secret” positive-thinking-stick-pictures-of-what-you-want-on-a-board-and-you-will-get-it-bulls**t and it turns out, it actually is bulls**t lol. Every day I open my front door and there is NEVER a 7 seater Ford Territory or a wheel chair conversion Van sitting in my carport. So whatever. Wheels for Hope it is. Good thing I got that coffee machine to help me get through the 100 page application form and copies of 50 various certificates* needed to apply.
*slight exaggeration. Feels like it though.**
**worth it for a car. So grateful.
2. Riding for the Disabled
I discovered during our iRehab therapy sessions that Pompy thinks bouncing up and down on a Peanut Ball like he’s riding a horse is HILARIOUS. Seriously, the “I just saw Thomas the Tank Engine” face comes out every time and so I decided that I was going to get him into this program. Upon talking to our OT I was informed that there is a thing called HIPPOTHERAPY. As disappointed as I was that there were no Hippos involved, I was very excited to hear about this. It basically is just therapy on a horse. The rhythmic movement, sensory output, ideally positions blah blah HORSES 😀 😀 😀 He’s gonna laugh and hopefully one day walk and I’ll cry, the end.
3. HBF Run for a Reason
Of all the things that Pompy struggles with, the thing that I absolutely hate the most, is his Epilepsy. It makes me want to scream expletives, smash things and drink myself into oblivion. Not really. Ok a little.
So this year we want to go in the HBF Run for a Reason to raise money for the Epilepsy Association of WA, because someone needs to cure this shit STAT. Ok I don’t think they work on that but they do support families with Epilepsy, and we seriously need all the support we can get.
I like to pretend that I’m fit (lol) so I’m telling myself that this will be fun, we’ll push Pomps around the track in his wheelchair and might even make up some Pompy shirts so we can be all official and pretend we do this stuff all the time. Excuse me while I find my asthma inhaler.
Speaking of Pompy shirts…
4. Pompy Shirts
Some of the things we’d like to do for Pomps require money. Money is afraid of our family and is always hiding from us so we were thinking one way to fund some of these activities might be to make up some Pompy merchandise, seeing as we kinda do that sort of thing with our side business anyway.
Who wouldn’t want to wear this guy on a shirt 😀
Look out for them being released soon. Actually I drew this picture specifically for this purpose last NOVEMBER lol so with this excellent procrastination pattern in mind, don’t bother looking out for them until like July 😦
5. Extra Therapy
After our iRehab stint last year, we were then given funding for 12 sessions of each – Physio, OT & Speech. Since attending these sessions and having so much therapy last year, I feel we really need to just dig deep and pay for him to continue this extra therapy. I’d like him to continue on with our new therapists and maybe add in extra Hydrotherapy seeing as he’s so in love with swimming.
Unfortunately this stuff is EXPENSIVE, so yeah, if anyone wants to buy a shirt if I can ever get them done then that would be most appreciated.
6. Pompy Kids Books
People keep telling me I need to turn this blog into a book… so maybe I will. Kinda. More like make some kids books but yeah, this one isn’t too high on my priority list, so we’ll see.
Yes, this is always a goal, but I just wanted to put it out there. YOU CAN DO THIS POMPS!! THIS IS YOUR YEAR 😀 😀 😀 Go for gold buddy! Please. You’re too heavy now lol.